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BOOK AN APPOINTMENTDr Shalini B, Consultant Neurologist, Brains Super Speciality Hospital.
Epilepsy is a neurological condition that affects millions of people worldwide. Despite being one of the most common neurological disorders, it remains misunderstood by many. This article aims to shed light on what epilepsy is, types, causes and the importance of awareness for those living with the condition.
Epilepsy is a chronic disorder of the brain, characterized by recurrent, unprovoked seizures. Seizures are sudden bursts of electrical activity in the brain that can cause a variety of physical and mental symptoms, depending on the part of the brain affected.
While seizures are often associated with shaking or convulsions, they can manifest in many different ways, ranging from subtle staring spells to loss of consciousness and uncontrollable movements.
Seizures can be frightening both for the person experiencing them and for witnesses, which is why awareness and understanding are crucial for improving outcomes.
Not all seizures look the same. They are typically classified into two main categories:
1. Focal Seizures (Partial Seizures): These originate in a specific area of the brain. Symptoms can vary based on the brain region involved. Some people may experience tingling sensations, sudden emotional changes, or jerking movements in one part of the body, while others may have a brief period of confusion or memory loss. There are two types:
- Focal onset aware seizures: The person remains conscious and aware.
- Focal onset impaired awareness seizures: Consciousness may be impaired, and the person may not remember the seizure.
2. Generalized Seizures: These involve both sides of the brain and can cause more severe symptoms, such as loss of consciousness, stiffening of the body, and rhythmic jerking movements. The most recognized type is tonic-clonic seizures (formerly known as "grand mal" seizures), where the body stiffens (tonic phase) followed by jerking movements (clonic phase).
There are several other specific types of seizures, including absence seizures (brief staring spells) and atonic seizures (sudden loss of muscle tone leading to falls).
Epilepsy can result from a variety of causes, but in many cases, no specific reason can be identified. Some common causes include:
Diagnosing epilepsy typically involves a combination of medical history, physical examination, and diagnostic tests. The primary test used to confirm epilepsy is the electroencephalogram (EEG), which measures the brain’s electrical activity and can help identify abnormal patterns associated with seizures. Additional imaging studies like MRI or CT scans may be used to look for any structural abnormalities in the brain.
Epilepsy is a manageable condition, and there are several treatment options available to help control seizures. The goal of treatment is to prevent or reduce the frequency and severity of seizures, allowing individuals to lead a normal life.
1. Medications: Antiepileptic drugs (AEDs) are the first line of treatment for most people with epilepsy. These medications work by stabilizing electrical activity in the brain to prevent seizures. It can take some time to find the right medication and dosage, as different individuals respond to medications in varying ways.
2. Surgery: If seizures cannot be controlled with medication, surgery may be considered. Surgical options might include removing a small part of the brain where the seizures originate or implanting a device that can help regulate brain activity.
3. Dietary Therapy: For some people, especially children with certain types of epilepsy, a high-fat, low-carbohydrate diet called the ketogenic diet may help control seizures.
4. Vagus Nerve Stimulation (VNS): A device implanted under the skin sends electrical signals to the brain to prevent seizures.
5. Lifestyle Modifications: Getting enough sleep, avoiding triggers like flashing lights or excessive stress, and adhering to a regular routine can help reduce the likelihood of seizures.
Living with epilepsy can be challenging, both physically and emotionally. Seizures can occur unexpectedly, which can make individuals feel isolated or anxious. However, with proper treatment, many people with epilepsy can live active and fulfilling lives.
It’s important to note that epilepsy is not a mental illness or a sign of low intelligence. People with epilepsy may experience cognitive and emotional challenges, but they can still excel in school, work, and personal life. In many cases, people with epilepsy can lead normal lives when seizures are well-managed.
There are several misconceptions about epilepsy that can lead to stigma and discrimination. For example, some people may wrongly believe that individuals with epilepsy are dangerous or cannot participate in certain activities. However, most people with epilepsy can safely engage in physical activities, drive (once they have been seizure-free for a certain period), and have successful careers and relationships.
Awareness and education are key to eliminating the stigma surrounding epilepsy. Public education campaigns can help teach the general population about what epilepsy is, how to recognize a seizure, and what to do when someone has one. It’s crucial to provide supportive environments for people with epilepsy, whether at school, in the workplace, or within the community.
If you ever witness someone having a seizure, it’s important to stay calm and follow these steps:
Stay with the person: Keep them safe by moving objects away from them and ensuring they are in a safe position.
Don’t restrain them: Avoid holding them down or trying to stop their movements.
After the seizure: Gently help the person into a recovery position (lying on their side). They may be confused or disoriented once the seizure ends, so offer reassurance.
Time the seizure: If the seizure lasts longer than 5 minutes, seek emergency medical help.
Epilepsy, despite being one of the most common neurological disorders, is often surrounded by myths and misconceptions. These misunderstandings can contribute to stigma and discrimination, making life more difficult for people with epilepsy. It's important to separate fact from fiction in order to better support and understand those living with the condition. Here are some of the most common myths about epilepsy and the truth behind them:
1. Myth: Epilepsy is a Mental Illness.
Fact: Epilepsy is not a mental illness, but a neurological condition that affects the brain’s electrical activity. While seizures can sometimes impact mood or behavior, epilepsy itself does not indicate a person's mental state. Many people with epilepsy lead successful lives and have no intellectual or psychological impairment.
2. Myth: People with Epilepsy Can’t Lead Normal Lives.
Fact: Many people with epilepsy can and do lead normal, fulfilling lives. With proper treatment, including medication and sometimes lifestyle adjustments, individuals can have careers, get married, drive (once they've been seizure-free for a certain period), and participate in sports or hobbies just like anyone else.
3. Myth: Epilepsy Always Involves Violent Seizures.
Fact: Seizures can take many different forms, and not all involve the dramatic convulsions often seen in movies. Many people with epilepsy experience mild seizures, such as brief periods of staring (absence seizures) or sudden muscle jerks (myoclonic seizures), without loss of consciousness. Seizures vary greatly depending on which part of the brain is affected.
4. Myth: You Can Swallow Your Tongue During a Seizure.
Fact: It is impossible to swallow your tongue during a seizure. This myth likely arose from watching tonic-clonic (formerly grand mal) seizures, where people often bite their tongue. While this can cause injury, the tongue cannot be swallowed. If someone is having a seizure, it’s crucial to avoid putting anything in their mouth to prevent injury.
5.Myth: People with Epilepsy Are Disabled and Cannot Work.
Fact: Epilepsy does not automatically lead to disability. With effective treatment and management, many individuals with epilepsy are able to work, pursue higher education, and maintain independent lives. Workplace accommodations may be necessary in some cases, but people with epilepsy are fully capable of contributing to the workforce.
6. Myth: Epilepsy Only Affects Children.
Fact: Epilepsy can develop at any age, though it is most commonly diagnosed in childhood or later in life (in adults over 60). It’s important to note that epilepsy affects people of all ages, and it is not limited to one particular stage of life.
7. Myth: People with Epilepsy Can’t Have Children.
Fact: Having epilepsy does not automatically prevent someone from having children. Many people with epilepsy become parents and lead healthy, normal family lives. However, it’s important for individuals with epilepsy to consult their healthcare provider when planning a pregnancy, as some medications used to treat epilepsy can affect pregnancy.
8. Myth: Epilepsy Is the Same for Everyone.
Fact: Epilepsy is highly individualized, and each person’s experience is unique. Seizure types, frequency, and severity can vary greatly from one person to another. Treatment plans are also personalized based on the individual’s specific needs, including the type of epilepsy they have and how they respond to medication.
9. Myth: People with Epilepsy Should Avoid Physical Activity.
Fact: Most people with epilepsy can engage in physical activity, including sports, exercise, and outdoor activities, as long as their seizures are under control. In some cases, precautions may be necessary (e.g., wearing protective gear or avoiding certain activities like swimming alone), but it’s important to encourage people with epilepsy to stay active, as physical activity is beneficial for overall health.